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Giedre's avatar

Thank you for your honesty. It’s refreshing.

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PamelaDrew's avatar

"I need to tell her the latest data (I’m very pro-data) and I need to explain to her this possibility that I could get Covid again in the next few weeks with being around thousands of people and I could spread it to her."

Hopefully this will take some of the fearful guilt away and leave you with some appreciation for the fact that for all the known possibilities there are an infinite number of possibilities that never crossed your mind.

First we need to acknowledge we will all die and the how, when and where are the only unknowns. If we are luck it will be painless and taken from the arms of a loved one to the arms of the angels. My true love and partner of 20 years left with our youngest, age eight, snuggled beside him in Lazy Boy watching a video, ending a seven year battle with a rare acute leukemia.

We began with less than 10% chance of him living more than 90 days and made medical history along the way with an incredible research team at Fred HUTCH and our own nutritional therapies included.

By the end it was 11 rounds of chemo, full body radiation, monoclonal radiation, bone marrow. stem cell and T-cell transplants.. a one in a million, near death, allergic reaction to Rifampin and virtually unseen case of graft v host called BOOP diagnosed w emergency airlift of tissue samples.. the steroids for that began a rapid downhill race.

In the beginning it was totally overwhelming and terrifying, what he thought was a case of mono wasn't and forever changed the course of our life. One of the "rules" that came with all the "therapy" aimed to destroy his immune system was no intimate contact. From the outset his position was I'd rather die of something from making love to my wife than any of the toxic sh*t doctors give me.

My mind was hardly as clear as his but our natural chemistry and rebellious spirits prevailed. There were a few scares in the early weeks post BMT and each time my mind reeled with the possibilities that my have originated with me but each case was another cause which was more consolation than vindication for that little voice in my head.

Then we got word of his golfing buddy of who was trimming a tree and fell from the ladder; instantly he was a quadriplegic. Something about that made me understand that all we have is now and no matter what we do to protect ourselves and the folks we love, chance has its own role. All we can do is find the joy and share the love and if the final chapter is with them so much the better.

All along the way there were things to worry about. When we got back to our home outside Chicago after 8 months in Seattle all three kiddies picked up chicken pox which was a high threats. Caring folks at Red Cross charged us $385 cash only for gamma-globulin to get through that. I've come to appreciate that for all the knowns to worry about there are many more likely outcomes so shed the guilt and share the love that also makes immune boosting endorphins!! Hope that helps <3

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